Daily Archives: February 8, 2019

P007 GAPS IN COMMUNICATION BETWEEN PATIENTS WITH ULCERATIVE COLITIS AND HEALTHCARE PROVIDERS: RESULTS OF A GLOBAL ULCERATIVE COLITIS NARRATIVE SURVEY

The Ulcerative Colitis (UC) Narrative is a global survey of patients (pts) and gastroenterology physicians (GIs) aimed at identifying the impact of UC and comparing and contrasting perceptions of UC burden and management approaches. Here, we present da… Continue reading

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P008 IMPACT OF A MULTIDISCIPLINARY E-BOARD FOR COMPLEX INFLAMMATORY BOWEL DISEASE MANAGEMENT

Managing patients with inflammatory bowel disease (IBD) in the modern era requires an interdisciplinary approach among a wide range of specialties with expertise in IBD. However, specialty IBD care is not available at all medical institutions. We herei… Continue reading

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P009 INFREQUENT COUNSELING BY PHYSICIANS ON IBD AND REPRODUCTIVE HEALTH ISSUES REPORTED BY PATIENTS IN CONJUNCTION WITH LOW CCPKNOW KNOWLEDGE SCORES IN AN EDUCATED COHORT

IBD and reproductive health counseling (IBD-RHC) is associated with higher knowledge, lower voluntary childlessness and greater medication adherence during pregnancy. Yet prior studies show documentation of IBD-RHC is low in both women and men, and few… Continue reading

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P010 QUALITATIVE EVALUATION OF PATIENT PERSPECTIVES REGARDING IBD&ME (IBDANDME.ORG), A NOVEL ONLINE BIOLOGIC DECISION AID FOR PATIENTS WITH INFLAMMATORY BOWEL DISEASE

Navigating the risk-benefit profiles of the various biologic options approved for inflammatory bowel disease (IBD) can be challenging for patients who are considering biologic therapies as a treatment option. We created an online patient decision aid called IBD&me (ibdandme.org) to clarify individual patient preferences about biologic therapies and encourage more active involvement in decision making. It includes an educational component and an interactive exercise with a series of ratings tasks that generates a personalized preferences report for patients to share and discuss with their physician. Continue reading

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P011 TETHERED IBD TOOLS TO SUPPORT PATIENTS AND PROVIDERS IN SHARED DECISION-MAKING AND THERAPY ACCESS

Effective tools are needed to support IBD patients and providers in shared decision-making (SDM) and navigating access to appropriate therapies. We developed and evaluated patient and provider educational online apps that present aligned content design… Continue reading

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P012 THE EFFECT OF VITAMIN D DEFICIENCY, AND ITS CORRECTION, ON CLINICAL OUTCOMES IN INFLAMMATORY BOWEL DISEASE (IBD)

Vitamin D (25OH) deficiency is highly prevalent in patients with inflammatory bowel disease (IBD). Observational studies have associated this with increased disease activity, but small vitamin D supplementation studies have not improved clinical outcom… Continue reading

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P013 UNREGULATED: MEDICAL COMPANIES USE SOCIAL MEDIA TO SELL ALTERNATIVE TREATMENTS FOR INFLAMMATORY BOWEL DISEASE

Patients are increasingly using social media platforms to inform themselves about their medical diagnoses and explore potential treatment options. The medical industry has begun to utilize social media to communicate directly with potential customers. … Continue reading

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P014 VALIDATING PATIENT REPORTED UTILIZATION IN THE IBD QORUS LEARNING HEALTH SYSTEM

The IBD Qorus initiative is a learning health system built on a collaboration between patients and providers that aims to improve the healthcare value for IBD patients. A key feature of learning health systems is the use of data within a collaborative … Continue reading

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P015 WHO YOU ARE MAY DEFINE HOW DOCTORS TREAT YOU: GENDER AND RACIAL DISPARITIES IN IBD MANAGEMENT

Patients with inflammatory bowel disease (IBD) require more frequent and varied screening tests in order to reduce patient morbidity and mortality. Beyond colonoscopies, routine skin, ophthalmologic, vitamin D, and DXA evaluations are recommended to re… Continue reading

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15 LONGITUDINAL PSYCHOLOGICAL HEALTH IN VETERANS WITH INFLAMMATORY BOWEL DISEASE

Psychological health plays a critical role in inflammatory bowel disease (IBD), contributing to both expression and maintenance of IBD symptoms. Research evaluating the effects of mental health difficulties on IBD in a Veteran population is limited. As… Continue reading

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